The Lived Experiences of Parents from Manggahan Elementary School in Raising a Child with Autism Spectrum Disorder Relating to Parental Stress, Support Needs and Coping Mechanisms

Autism spectrum disorder (ASD) is a neurological condition that affects the way individuals communicate, interact, and behave. According to the World Health Organization, approximately 1 in 100 children have been diagnosed with autism spectrum disorder worldwide. Atos (2024) stated that parental stress in families with children diagnosed with ASD can be significant, since parents often feel overwhelmed by their children’s need. This study aimed to explore the lived experiences of parents from Manggahan Elementary School in Manggahan, General Trias City, Cavite in raising a child with ASD, focusing on its effects on parental stress, the support needed by parents, and coping mechanisms they adopt. To gather the essential data, in-person interviews were conducted with parents of children with ASD, selected through a purposive sampling technique. Semi-structured questionnaires, validated by licensed psychologists with a master’s degree, were used during the interview. Thematic analysis was then utilized by the researchers to identify and reveal the patterns and recurring themes. The findings highlight how the stressors affect the parent’s caregiving capability, emotional well-being, social interaction, and financial stability. Furthermore, the key informants emphasized their need for additional support from the government, health institutions, and other organizations. The study offers recommendations for policies, practices, and an action plan aimed at promoting awareness and providing support for parents caring for children with ASD, aligning with SDG 3’s vision of good health and well-being.

Autism Spectrum Disorder, Coping Mechanisms, Lived Experiences, Parental Stress, Support Needs

1. Al-Saadi, M. (2024) 'Parenting Stress in Parents Raising Children with Autism Spectrum Disorder (ASD): A Concept Analysis,' OALib, 11(08), pp. 1–17. Available at: https://doi.org/10.4236/oalib.1111771. [Google Scholar] [Crossref]

2. Academy, E. (2023) Research Interviews: An effective and insightful way of data collection. Available at: https://www.enago.com/academy/research-interviews/. [Google Scholar] [Crossref]

3. Atos, M.L.J. (2024) Parental Stress and Coping Mechanisms in Families with Children on The Autism Spectrum. Available at: https://www.ajol.info/index.php/ejhm/article/view/268283. [Google Scholar] [Crossref]

4. Awadu, J., Lee, G.K. and Curtiss, S. (2022) 'Caregiving Challenges, service needs, impact and future care for autism in Uganda,' International Journal of Disability Development and Education, 71(4), pp. 503–517. Available at: https://doi.org/10.1080/1034912x.2022.2150751. [Google Scholar] [Crossref]

5. Bhandari, P. (2020). What Is Qualitative Research? | Methods & Examples. Scribbr. Available at: https://www.scribbr.com/methodology/qualitative -research/ [Google Scholar] [Crossref]

6. Boling, N.C. (2024) Filipina American Mothers’ Experiences Obtaining Services for Their Children with Autism Spectrum Disorder. Available at: https://scholarlycommons.pacific.edu/uop_etds/4286/. [Google Scholar] [Crossref]

7. Caulfield, J. (2023). How to Do Thematic Analysis| Step-by-Step Guide & Examples. Available at: https://www.scribbr.com/methodology/thematic-analysis/ [Google Scholar] [Crossref]

8. Chin, W.-C., Chang, H.-L. and Chao, K.-Y. (2023) 'Exploring coping strategies of parents of children with autism spectrum Disorder in Taiwan: a qualitative study,' Journal of Nursing Research, 31(3), p. e278. Available at: https://doi.org/10.1097/jnr.0000000000000553. [Google Scholar] [Crossref]

9. Crane, L. et al. (2021) 'Autistic parents’ views and experiences of talking about autism with their autistic children,' Autism, 25(4), pp. 1161–1167. Available at: https://doi.org/10.1177/1362361320981317. [Google Scholar] [Crossref]

10. Delve, Ho, L. & Limpaecher, A. (2022) What is Phenomenological Research Design? — Delve. Available at: https://delvetool.com/blog/phenomenology. [Google Scholar] [Crossref]

11. Di Renzo, M. et al. (2021) 'What is Parental Stress Connected to in Families of Children With Autism Spectrum Disorder? Implications for Parents’ Interventions,' Journal of Family Issues, 43(9), pp. 2456–2479. Available at: https://doi.org/10.1177/0192513x211030735. [Google Scholar] [Crossref]

12. Goodwin, J. and Zaman, U. (2023) 'Editorial: Mental health stigma and UN Sustainable Development Goals,' Frontiers in Psychiatry, 14. Available at: https://doi.org/10.3389/fpsyt.2023.1190406. [Google Scholar] [Crossref]

13. Gonzalo, A. (2024) Sister Callista Roy: Adaptation Model of Nursing. Nurseslabs. Available at: https://nurseslabs.com/sister-callista-roys-adaptation-model/ [Google Scholar] [Crossref]

14. Harris, E. (2023) 'Autism prevalence has been on the rise in the US for Decades—And that’s progress,' JAMA, 329(20), p. 1724. Available at: https://doi.org/10.1001/jama.2023.6078. [Google Scholar] [Crossref]

15. Heymann, J. and Sprague, A. (2023) 'Meeting the UN Sustainable Development Goals for mental health: why greater prioritization and adequately tracking progress are critical,' World Psychiatry, 22(2), pp. 325–326. Available at: https://doi.org/10.1002/wps.21090. [Google Scholar] [Crossref]

16. Hirota, T. and King, B.H. (2023) 'Autism spectrum Disorder,' JAMA, 329(2), p. 157. Available at: https://doi.org/10.1001/jama.2022.23661. [Google Scholar] [Crossref]

17. Lafont-Torio, J. et al. (2023) 'Perceptions of progress toward achieving the sustainable development goals: Insights from cooperative managers,' Sustainable Technology and Entrepreneurship, 3(1), p. 100055. Available at: https://doi.org/10.1016/j.stae.2023.100055. [Google Scholar] [Crossref]

18. Lagang-Buenaventura, M.K.C., MD and Ang-Nolasco, V.D.C., MD (2024) 'Needs and Coping during the COVID-19 Pandemic among Families of Children with Autism Spectrum Disorder in a Government Tertiary Hospital,' Acta Medica Philippina, 58(7), pp. 152–162. Available at: https://doi.org/10.47895/amp.v58i7.6331. [Google Scholar] [Crossref]

19. Lee, T., & Chen, J. (2023). The Intersection of Healthcare Costs and Family Financial Management: Strategies for Coping with Chronic Illness. Family and Community Health, 46(3), 44-57. [Google Scholar] [Crossref]

20. Leonardi, E. et al. (2021) 'The Route of Stress in Parents of Young Children with and without Autism: A Path-Analysis Study,' International Journal of Environmental Research and Public Health, 18(20), p. 10887. Available at: https://doi.org/10.3390/ijerph182010887. [Google Scholar] [Crossref]

21. Leosala, L. (2023) Meeting the Needs of Children with Autism Spectrum Disorder: Early Intervention Experiences of Filipino Parents. Available at: https://ejournals.ph/article.php?id=21323. [Google Scholar] [Crossref]

22. Monhol, P.P. et al. (2021) Children with autistic spectrum disorder: perception and experience of families. Available at: https://www.semanticscholar.org/paper/Children-with-autistic-spectrum-disorder%3A-and-of-Monhol-Jastrow/24b555f08f319a9fcfa170a73c8fa8cea0fde858. [Google Scholar] [Crossref]

23. Mak, M.C.K. et al. (2020) 'The Relation between Parenting Stress and Child Behavior Problems: Negative Parenting Styles as Mediator,' Journal of Child and Family Studies, 29(11), pp. 2993–3003. Available at: https://doi.org/10.1007/s10826-020-01785-3. [Google Scholar] [Crossref]

24. Neustadt, R. (2024, January 11). Parents of children with autism can reduce parenting frustrations with this mindset shift. Circle Care Services. Available at: https://circlecareservices.com/reducing-parenting-frustrations-with-this-mindset-shift/ [Google Scholar] [Crossref]

25. Papadopoulos, D. (2021) 'Mothers’ Experiences and Challenges Raising a Child with Autism Spectrum Disorder: A Qualitative Study,' Brain Sciences, 11(3), p. 309. Available at: https://doi.org/10.3390/brainsci11030309. [Google Scholar] [Crossref]

26. Pare, C. (2021). Theoretical Framework. Studocu. Retrieved from: Available at: https://www.studocu.com/ph/document/our-lady-of-fatima-university/nursing-research/theoretical-Framework-sissy-callista- roy/109220280?origin=home-recent-1. [Google Scholar] [Crossref]

27. Rushworth, S. (2020) Identifying supports for parents of children with autism spectrum disorder. Available at: https://scholar.dominican.edu/masters-theses/230/. [Google Scholar] [Crossref]

28. Rositas, N., Fitriani, H., Muslihat, A. & Tabroni, I. (2023) ‘Psychological dynamics of parents: Educational adaptations of children with special needs in schools and homes’, International Journal of Integrative Sciences, 2(2), pp. 97–108. Available at: https://doi.org/10.55927/ijis.v2i2.3090 [Google Scholar] [Crossref]

29. Samsell, B., Lothman, K., Samsell, E.E. & Ideishi, R.I. (2021) 'Parents’ experiences of caring for a child with autism spectrum disorder in the United States: A systematic review and metasynthesis of qualitative evidence.,' Families Systems & Health, 40(1), pp. 93–104. Available at: https://doi.org/10.1037/fsh0000654. [Google Scholar] [Crossref]

30. Sese, L.V.C. and Guillermo, Ma.C.L. (2023) 'A Story of Hope: How a Community Project is Transforming the Lives of Filipino Children With Intellectual and Developmental Disabilities,' Global Pediatric Health, 10, p. 2333794X231211215. Available at: https://doi.org/10.1177/2333794x231211215. [Google Scholar] [Crossref]

31. Sorooshian, S. (2024) 'The sustainable development goals of the United Nations: A comparative midterm research review,' Journal of Cleaner Production, 453, p. 142272. Available at: https://doi.org/10.1016/j.jclepro.2024.142272. [Google Scholar] [Crossref]

32. Smith, T. & Doe, J. (2021) ‘The financial impact of chronic illnesses on families’, Journal of Pediatric Health Care, 35(2), pp. 150–160. [Google Scholar] [Crossref]

33. Thompson, P., & Hart, R. (2023). Dietary Preferences and Costs in Children with Autism Spectrum Disorders: Survey Results. Nutrients, 15(1), 132. [Google Scholar] [Crossref]

34. Tomasic, M.M. (2022) The five stages of grief. HealthCentral. Available at: Available at: https://www.healthcentral.com/condition/depression/stages-of-grief [Google Scholar] [Crossref]

35. Turnage, D. and Conner, N. (2022) 'Quality of life of parents of children with Autism Spectrum Disorder: An integrative literature review,' Journal for Specialists in Pediatric Nursing, 27(4), p. e12391. Available at: https://doi.org/10.1111/jspn.12391. [Google Scholar] [Crossref]

36. Tyrrell, P., Harberger, S., Schoo, C., & Siddiqui, W. (2023a, February 26). Kubler-Ross Stages of Dying and Subsequent Models of Grief. StatPearls - NCBI Bookshelf. Available at: https://www.ncbi.nlm.nih.gov/books/NBK507885/ [Google Scholar] [Crossref]

37. Vijila, S. and Sreelatha, S. (2022) 'Stress coping ability of parents of mentally challenged children,' International Journal of Health Sciences, pp. 799–803. Available at: https://doi.org/10.53730/ijhs.v6ns10.13729. [Google Scholar] [Crossref]

38. Wallace‑Watkin, C., Sigafoos, J., Woods, L. & Waddington, H. (2023) ‘Parent reported barriers and facilitators to support services for autistic children in Aotearoa New Zealand’, Autism, 27(8), pp. 2542–2554. Available at: https://doi.org/10.1177/13623613231168240 [Google Scholar] [Crossref]

39. Whelan, S. et al. (2024) 'Parental experiences of raising an autistic child in Ireland: A qualitative thematic analysis,' Autism, 29(2), pp. 395–407. Available at: https://doi.org/10.1177/13623613241277040. [Google Scholar] [Crossref]

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