Exploring Quality of Life Among People with Disabilities in Malaysia

Authors

Pheba Elizabeth Thomas

UNITAR International University: Petaling Jaya, Malaysia (Malaysia)

Nuzha Mohamed Taha

UNITAR International University: Petaling Jaya, Malaysia (Malaysia)

Article Information

DOI: 10.47772/IJRISS.2026.100300380

Subject Category: Social science

Volume/Issue: 10/3 | Page No: 5131-5143

Publication Timeline

Submitted: 2026-03-20

Accepted: 2026-03-25

Published: 2026-04-09

Abstract

This research focused on understanding what quality of life means for people with disabilities in Malaysia, emphasizing physical functioning, psychological well-being, social relationships, and experiences of stigmatization. Through a qualitative research design, six Malaysian adults who were living with a disability and residing in Klang Valley were involved in the research purposefully. The data were collected through virtual, semi-structured interviews and analysed using thematic analysis. The participants' quality of life was affected by a combination of health-related limitations and social-emotional challenges. While some participants mentioned they had no concerns about their general health, they were bothered by chronic illnesses, disability-related complications, and mobility restrictions that seriously affected their sense of well-being, independence, and function in performing day-to-day activities. Stress, anxiety, loneliness, depression, and not knowing where they stand with employment and relationships were other occurrences. The social aspect was another challenge, with barriers of communication, exclusion, lack of mutual understanding by others, and loss of confidence in social settings greatly affecting the friends and relationship circles of the participants. Stigmatization also proved to be a significant issue as participants discovered that they were misunderstood, underestimated, overprotected, and treated unfairly. Nevertheless, most of the participants were so full of tenacious spirit and determination in overcoming the challenges facing them in their quest to live beyond the limits that life sets forth for them. Above all, research goes on to make us realize that life quality is decided for people with disabilities by factors well beyond their physical health, and it has been defended by their psychological and social experiences.

Keywords

Quality Of Life, People with Disabilities, Psychological Well-Being

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References

1. Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. [Google Scholar] [Crossref]

2. Camino-Alarcón, J., Robles-Bello, M. A., Valencia-Naranjo, N., & Sarhani-Robles, A. (2024). A Systematic Review of Treatment for Children with Autism Spectrum Disorder: The Sensory Processing and Sensory Integration Approach. Children, 11(10), 1222. https://doi.org/10.3390/children11101222 [Google Scholar] [Crossref]

3. Clarke, V., & Braun, V. (2018). Using thematic analysis in counselling and psychotherapy research: A critical reflection. Counselling and Psychotherapy Research, 18(2), 107–110. https://doi.org/10.1002/capr.12165 [Google Scholar] [Crossref]

4. Corbin, J., & Strauss, A. (2015). Basics of qualitative research: Techniques and procedures for developing grounded theory (4th ed.). Sage. [Google Scholar] [Crossref]

5. Culham, A., & Nind, M. (2003). Deconstructing normalisation: Clearing the way for inclusion. Journal of Intellectual & Developmental Disability, 28(1), 65–78. https://doi.org/10.1080/1366825031000086902 [Google Scholar] [Crossref]

6. DeJonckheere, M., & Vaughn, L. M. (2019). Semi-structured interviewing in primary care research: A balance of relationship and rigour. Family Medicine and Community Health, 7(2), https://doi.org/10.1136/fmch-2018-000057 [Google Scholar] [Crossref]

7. DIS-QOL Group. (2011). WHOQOL-BREF-ID & disability module: A measure of the quality of life of people with intellectual disabilities. World Health Organization. Retrieved March 10, 2022, https://www.who.int/mental_health/evidence/WHOQOL_DIS_ID_Intellectual_Disabilities.pdf [Google Scholar] [Crossref]

8. Erez, A. B., & Gal, E. (2020). Quality of life: A universal or a disability-specific concept? Canadian Journal of Occupational Therapy, 87(1), 1–8. [Google Scholar] [Crossref]

9. Ghazali, N. H. M., Thomeeran, H., Bose, P. C., & Ahmad Anuar, S. Q. S. (2024). Enhancing higher education opportunities for special needs students in Malaysia: A case study. International Journal of Academic Research in Progressive Education and Development, 13(4). [Google Scholar] [Crossref]

10. Hamedani, S. S., Aslam, S., Hamedani, S. S., & Razzaqi, H. (2025). Bridging gaps: Assistive technology empowering working adults with disabilities for sustainable development. International Journal of Innovative Research and Scientific Studies, 8(3), 1193–1204. https://doi.org/10.53894/ijirss.v8i3.6769 [Google Scholar] [Crossref]

11. Harris, S. P., Owen, R., & De Ruiter, C. (2012). Civic engagement and people with disabilities: The role of advocacy and technology. Journal of Community Engagement and Scholarship, 5(1), 70–83. https://doi.org/10.54656/AWPE1856 [Google Scholar] [Crossref]

12. Jani, R., Alias, A. A., & Tumin, M. (2020). Persons with disabilities’ education and quality of life: Evidence from Malaysia. International Journal of Inclusive Education. https://doi.org/10.1080/13603116.2020.1726511 [Google Scholar] [Crossref]

13. Levine, G. N., Cohen, B. E., Commodore-Mensah, Y., Fleury, J., Huffman, J. C., Khalid, U., Labarthe, D. R., Lavretsky, H., Michos, E. D., Spatz, E. S., & Kubzansky, L. D. (2021). Psychological health, well-being, and the mind-heart-body connection: A scientific statement from the American Heart Association. Circulation, 143(10), e763–e783. https://doi.org/10.1161/CIR.0000000000000947 [Google Scholar] [Crossref]

14. Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Sage. [Google Scholar] [Crossref]

15. Magaldi, D., & Berler, M. (2020). Semi-structured interviews. In V. Zeigler-Hill & T. K. Shackelford (Eds.), Encyclopedia of personality and individual differences. Springer. https://doi.org/10.1007/978-3-319-24612-3_857 [Google Scholar] [Crossref]

16. Mfoafo-M’Carthy, M., & Sossou, M. A. (2017). Stigma, discrimination, and social exclusion of the mentally ill: The case of Ghana. Journal of Human Rights and Social Work, 2, 128–133. https://doi.org/10.1007/s41134-017-0043-2 [Google Scholar] [Crossref]

17. Micai, M., Fulceri, F., Caruso, A., Guzzetta, A., & Calderoni, S. (2023). Prevalence of co-occurring conditions in children and adults with autism spectrum disorder: A systematic review and meta-analysis. Neuroscience & Biobehavioral Reviews, 153, 105436. https://doi.org/10.1016/j.neubiorev.2023.105436 [Google Scholar] [Crossref]

18. National Council of Social Services. (2017). Understanding the quality of life of adults with disabilities. National Council of Social Services. [Google Scholar] [Crossref]

19. Nowell, L. S., Norris, J. M., White, D. E., & Moules, N. J. (2017). Thematic analysis: Striving to meet the trustworthiness criteria. International Journal of Qualitative Methods, 16(1), 1–13. https://doi.org/10.1177/1609406917733847 [Google Scholar] [Crossref]

20. Oliver, M. (1990). The politics of disablement. Macmillan. [Google Scholar] [Crossref]

21. Pasin, T., & Dogruoz Karatekin, B. (2024). Determinants of social participation in people with disability. PLOS ONE, 19(5), e0303911. https://doi.org/10.1371/journal.pone.0303911 [Google Scholar] [Crossref]

22. Rajati, F., Ashtarian, A., Salari, N., Ghanbari, M., Naghibifar, Z., & Hosseini, S. Y. (2018). Quality of life predictors in physically disabled people. Journal of Education and Health Promotion, 7, Article 61. https://doi.org/10.4103/jehp.jehp_115_17 [Google Scholar] [Crossref]

23. Sakız, H., Sarıcalı, M., & Türküm, A. S. (2017). Does disability matter in counselling? Views of counsellors with visual disabilities and their clients. British Journal of Guidance & Counselling. https://doi.org/10.1080/03069885.2017.1393496 [Google Scholar] [Crossref]

24. Shofany, C. (2017). Quality of life among chronic disease patients. Nurse Care Open Access Journal, 4(2), 385–394. https://doi.org/10.15406/ncoaj.2017.04.00103 [Google Scholar] [Crossref]

25. The WHOQOL Group. (1995). The World Health Organization quality of life assessment (WHOQOL): Position paper from the World Health Organization. Social Science & Medicine, 41(10), 1403–1409. https://doi.org/10.1016/0277-9536(95)00112-K [Google Scholar] [Crossref]

26. Trani, J. F., Moodley, J., Anand, P., Graham, L., & Maw, M. T. T. (2020). Stigma of persons with disabilities in South Africa: Uncovering pathways from discrimination to depression and low self-esteem. Social Science & Medicine, 265, 113449. https://doi.org/10.1016/j.socscimed.2020.113449 [Google Scholar] [Crossref]

27. Troutman, K. (2021). Have a physical or mental disability that limits your employment. Americans With Disabilities Act. Retrieved February 28, 2022, from https://vetfedjobs.org/faq/have-a-physical-or-mental-disability-that-limits-your-employment/ [Google Scholar] [Crossref]

28. United Nations Department of Economic and Social Affairs. (2024). Disability and development report 2024: Accelerating the realization of the Sustainable Development Goals by, for and with persons with disabilities. United Nations. [Google Scholar] [Crossref]

29. Westgate, R. J., & Blessing, C. (2005). The power of person-centered planning. Teaching Exceptional Children Plus, 2(2), Article 2. [Google Scholar] [Crossref]

30. Whittle, E. L., Fisher K. R., Reppermund, S., Lenroot, R., & Trollor, J. (2018) Barriers and Enablers to Accessing Mental Health Services for People with Intellectual Disability: A Scoping Review. Journal of Mental Health Research in Intellectual Disabilities, (11)1, 69-102, https://doi.org/10.1080/19315864.2017.1408724 [Google Scholar] [Crossref]

31. World Health Organization. (2023, March 7). Disability. [Google Scholar] [Crossref]

32. World Health Organization. (2025, September 17). Autism. https://www.who.int/news-room/fact-sheets/detail/autism-spectrum-disorders [Google Scholar] [Crossref]

33. World Health Organization. (n.d.). WHOQOL: Measuring quality of life [Google Scholar] [Crossref]

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