Article on the Lived Experiences of Parents of Children with Neurodevelopmental Disabilities in Zimbabwe

The study examined the lived experiences of parents of children with neurodevelopmental disabilities in Zimbabwe. These disabilities that those incurred during the developmental phase. They affect behaviour, memory, concentration and the ability to learn. The aim of the research was to understand the experiences of the parents in Zimbabwe’s economic, cultural and the societal context. The objectives involve understanding the experiences of these parents, secondly examining the coping strategies and lastly investigate the support services available to the parents. The methodology employed was a qualitative one with a phenomenological design. A sample of 15 participants was interviewed. The interviews were followed with a thematic analysis which gave rise to the results. On the experiences parents with their children faced stigma, family disintegration, misconceptions about the causes and negativity regarding the future of their children. On the coping strategies it was found that the parents find strengths in prayer, strengths observed in their affected child, support groups and keeping busy. Existing support services were education and financial assistance. These findings helped to draw a conclusion that parents face significant changes that include stigma, cultural misconceptions as well as lack of institutional support. Despite all these challenges they are resilient and confide in their religious beliefs and children’s strength to deal with challenges. This exposes the need to focus on the welfare of parents as much as their children as they are equally affected.

This exposes the need to focus on the welfare of parents as much as their children as they are equally affected

1. American Psychiatric Association (2024). Neurodevelopmental Disorders. https://www.psychiatry.org/patients-families/neurodevelopment-disorders [Google Scholar] [Crossref]

2. Bizzego, A., Lim, M., Schiavon, G., & Esposito, G. (2020). Children with developmental disabilities in low-and middle-income countries: More neglected and physically punished. International journal of environmental research and public health, 17(19), 7009. [Google Scholar] [Crossref]

3. Chirongoma, S., & Naicker, L. W. (2023). African women, religion and pandemics: Collective resilience, responsibility and adaptability. HTS Theological Studies, 79(3), 1-3. [Google Scholar] [Crossref]

4. Creswell, J. W. (2013). Steps in conducting a scholarly mixed methods study. [Google Scholar] [Crossref]

5. Emmanuel, C. J., Knafl, K. A., Hodges, E. A., Docherty, S. L., O'Shea, T. M., & Santos Jr, H. P. (2022). Family members' experience of well‐being as racial/ethnic minorities raising a child with a neurodevelopmental disorder: A qualitative meta‐synthesis. Research in Nursing & Health, 45(3), 314-326. [Google Scholar] [Crossref]

6. Fischer, E. Women and Madness in the South African Novel. [Google Scholar] [Crossref]

7. Jylhä, K. M., Stanley, S. K., Ojala, M., & Clarke, E. J. (2022). Science denial. European Psychologist. [Google Scholar] [Crossref]

8. Katooa, N. E. (2024). Resilience of Saudi families with chronically ill children (Doctoral dissertation, RMIT University). [Google Scholar] [Crossref]

9. Katumba, K. R., Tann, C. J., Webb, E. L., Tenywa, P., Nampijja, M., Seeley, J., & Greco, G. (2023). The economic burden incurred by families caring for a young child with developmental disability in Uganda. PLOS Global Public Health, 3(4), e0000953. [Google Scholar] [Crossref]

10. Morgart, K., Harrison, J. N., Hoon Jr, A. H., & Wilms Floet, A. M. (2021). Adverse childhood experiences and developmental disabilities: risks, resiliency, and policy. Developmental Medicine & Child Neurology, 63(10), 1149-1154. [Google Scholar] [Crossref]

11. Mutale, Q. (2020). Exclusion of children with disabilities in community development in Binga Rural Communities, Zimbabwe. African Journal of Social Work, 10(2), 70-76. [Google Scholar] [Crossref]

12. Osborne, N., & Grant-Smith, D. (2021). In-depth interviewing. In Methods in urban analysis (pp. 105-125). Singapore: Springer Singapore. [Google Scholar] [Crossref]

13. Retuerma, S. F. N. (2019). A single case henomenological study of a father of a child diagnosed with down syndrome. [Google Scholar] [Crossref]

14. Subu, M. A., Holmes, D., Arumugam, A., Al-Yateem, N., Maria Dias, J., Rahman, S. A., ... & Abraham, M. S. (2022). Traditional, religious, and cultural perspectives on mental illness: A qualitative study on causal beliefs and treatment use. International journal of qualitative studies on health and well-being, 17(1), 2123090. [Google Scholar] [Crossref]

15. Tavoulari, A. I. (2022). “Disability, attitudes and stigma in Greek society”: exploring the perceptions of caregivers and professionals regarding the repetitive behaviour of children with vision impairment and children on the autism spectrum (a comparative study) (Doctoral dissertation, University of Birmingham). [Google Scholar] [Crossref]

16. Tesemma, S. T. (2011). Educating children with disabilities in Africa. In The African Child Policy Forum (ACPF) (Vol. 127). [Google Scholar] [Crossref]

17. Tesemma, S., & Coetzee, S. (2023). Manifestations of spatial exclusion and inclusion of people with disabilities in Africa. Disability & society, 38(10), 1934-1957. [Google Scholar] [Crossref]

18. UNICEF (2022). Caring for children with disabilities: Managing the triple threat to families. YouTube 4 December. https://www.youtube.com/watch?v=uhdhaJF492M&t=27 [Google Scholar] [Crossref]

19. World Health Organization. (2021). World health statistics 2021: monitoring health for the SDGs, sustainable development goals. [Google Scholar] [Crossref]

20. Zablotsky, B., Black, L. I., Maenner, M. J., Schieve, L. A., Danielson, M. L., Bitsko, R. H., ... & Boyle, C. A. (2019). Prevalence and trends of developmental disabilities among children in the United States: 2009–2017. Pediatrics, 144(4). [Google Scholar] [Crossref]

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