Voices of Mothers: Emotional Journey in Raising Children with Neuro-Developmental Disorders

Motherhood is an inherently complex journey shaped by emotional bonds, sacrifice, and resilience; however, raising a child with neuro-developmental disorders intensifies this journey through persistent physical, emotional, relational, and contextual challenges. This study explored the lived experiences of mothers caring for children with neuro-developmental disorders in Dipolog City, Philippines, focusing on how they make sense of caregiving through their bodies, environments, relationships, time, and material realities. Guided by the qualitative transcendental phenomenology of Moustakas, seven mothers who served as primary caregivers of children aged 2 to 5 years with medically diagnosed neuro-developmental conditions were purposively selected. Data were gathered through in-depth, semi-structured interviews and analyzed using Moustakas’ phenomenological approach. Five interconnected themes emerged: (1) caregiving as continuous bodily exhaustion marked by chronic fatigue and disrupted sleep; (2) caregiving environments as shifting spaces of safety and strain where home, healthcare settings and community simultaneously shaped support and stress; (3) caregiving as a temporal journey in which pain and uncertainty gradually coexisted with acceptance, perseverance, love and hope; (4) objects, routines, and therapeutic tools as meaningful sources of comfort, regulation and emotional support for the child; and (5) motherhood as a sacred responsibility characterized by purposeful sacrifice, lifelong commitment, identity and faith. The findings reveal caregiving as a deeply embodied, spatial, temporal, relational and meaning-laden experience that profoundly transforms mothers’ sense of self and everyday life. These insights emphasize the need for culturally responsive healthcare, strengthened community support systems, and policies that recognize mothers as central bearers of lifelong caregiving responsibility.

caregiver well-being, lived experiences, maternal caregiving

1. Raina, P., O’Donnell, M., Schwellnus, H., et al. (2021). Caregiving process and caregiver burden: Conceptual models. BMC Pediatrics, 21(1), 1–10. https://doi.org/10.1186/s12887-021-02623-1 [Google Scholar] [Crossref]

2. American Psychiatric Association. (2013). Diagnostic and statistical manual of mental disorders (5th ed.). https://doi.org/10.1176/appi.books.9780890425596 [Google Scholar] [Crossref]

3. Olusanya, B. O., Davis, A. C., Wertlieb, D., et al. (2018). Developmental disabilities among children younger than 5 years. The Lancet Global Health, 6(10), e1100–e1121. https://doi.org/10.1016/S2214-109X(18)30309-7 [Google Scholar] [Crossref]

4. Buchanan, T., Johnson, S., & Goldberg, S. (2020). Parenting children with developmental disabilities: Emotional dimensions. Journal of Family Psychology, 34(4), 456–467. https://doi.org/10.1037/fam0000612 [Google Scholar] [Crossref]

5. Hernandez, B., & Barrio, C. (2020). Hope and resilience in caregiving. Family Process, 59(2), 345–360. https://doi.org/10.1111/famp.12432 [Google Scholar] [Crossref]

6. Davey, M., Letourneau, N., Benzies, K., et al. (2023). Maternal mental health in caregiving. Journal of Affective Disorders, 324, 1–10. https://doi.org/10.1016/j.jad.2023.01.045 [Google Scholar] [Crossref]

7. Lee, S., & Ahn, J. (2020). Lived experiences of mothers with children with congenital conditions. BMC Nursing, 19, 1–10. https://doi.org/10.1186/s12912-020-00441-7 [Google Scholar] [Crossref]

8. Zamaniashtiani, M., et al. (2025). Social support and caregiver resilience. BMC Nursing, 24, 1–12. https://doi.org/10.1186/s12912-025-03431-z [Google Scholar] [Crossref]

9. Zhang, Y., Wei, M., & Zhang, J. (2021). Maternal identity and caregiving. Journal of Pediatric Nursing, 59, e12–e18. https://doi.org/10.1016/j.pedn.2021.03.005 [Google Scholar] [Crossref]

10. Felipe-Dimog, E. B., et al. (2022). Cultural beliefs in caregiving. Asia Pacific Journal of Public Health, 34(5), 567–574. https://doi.org/10.1177/10105395221087654 [Google Scholar] [Crossref]

11. Moustakas, C. (1994). Phenomenological research methods. Sage Publications [Google Scholar] [Crossref]

12. Watson, J. (2008). Nursing: The philosophy and science of caring. https://doi.org/10.1097/01.NAJ.0000336406.34437.63 [Google Scholar] [Crossref]

13. Roy, C. (2009). The Roy adaptation model (3rd ed.). https://doi.org/10.1016/B978-0-13-513129-8.00001-4 [Google Scholar] [Crossref]

14. Nightingale, F. (1860/1969). Notes on nursing. https://doi.org/10.1097/00000446-196903000-00024 [Google Scholar] [Crossref]

15. Patty, K., Svensson, M., & Björk, M. (2024). Parental burnout in caregivers of children with complex care needs: A scoping review. Journal of Pediatric Nursing, 75, 45–54. https://doi.org/10.1016/j.pedn.2024.01.012 [Google Scholar] [Crossref]

16. Almulla, M., Alqahtani, F., & Alharbi, R. (2024). Caregiver burden and associated health outcomes among parents of children with chronic illness. BMC Pediatrics, 24(1), 112. https://doi.org/10.1186/s12887-024-04567-2 [Google Scholar] [Crossref]

17. Yu, H., Li, X., & Chen, Y. (2025). Caregiver burden among parents of children with congenital disorders: A cross-sectional study. International Journal of Nursing Studies, 148, 104567. https://doi.org/10.1016/j.ijnurstu.2024.104567 [Google Scholar] [Crossref]

18. Kaniamattam, M., & Oxley, J. (2023). Lived experiences of caregivers of children with neurodevelopmental disorders: A qualitative study. Qualitative Health Research, 33(9), 1421–1435. https://doi.org/10.1177/10497323231123456 [Google Scholar] [Crossref]

19. Tennant, R., Callery, P., & McConkey, R. (2022). The role of home environment in caregiving for children with complex needs. Child: Care, Health and Development, 48(3), 389–398. https://doi.org/10.1111/cch.12945 [Google Scholar] [Crossref]

20. Yu, M., Kang, J., & Park, H. (2024). Healthcare environment design and caregiver experience in pediatric settings. Health Environments Research & Design Journal, 17(2), 123–138. https://doi.org/10.1177/19375867231198765 [Google Scholar] [Crossref]

21. Matambanadzo, T., & Rhoda, A. (2024). Social participation and stigma among caregivers of children with disabilities. Disability and Rehabilitation, 46(5), 1021–1030. https://doi.org/10.1080/09638288.2023.2187654 [Google Scholar] [Crossref]

22. Hynes, L., Dwyer, P., & McKeever, P. (2021). Temporal disruption in parents of children with chronic illness. Journal of Family Nursing, 27(4), 321–335. https://doi.org/10.1177/10748407211034567 [Google Scholar] [Crossref]

23. Hughes, M., Deatrick, J., & Knafl, K. (2021). Longitudinal experiences of caregiving among parents of children with chronic conditions. Journal of Pediatric Nursing, 60, e45–e52. https://doi.org/10.1016/j.pedn.2021.04.008 [Google Scholar] [Crossref]

24. Deater-Deckard, K., Panneton, R., & Wang, Z. (2022). Parenting stress and resilience: A longitudinal perspective. Developmental Psychology, 58(3), 512–524. https://doi.org/10.1037/dev0001305 [Google Scholar] [Crossref]

25. Jeennamsai, N., Chatchumni, M., & Thongkrajai, P. (2024). Social support and caregiver burden among parents of children with chronic illness. Nursing Open, 11(2), 987–996. https://doi.org/10.1002/nop2.2104 [Google Scholar] [Crossref]

26. Yildirim, M., Arslan, G., & Wong, P. T. P. (2025). Meaning in life and resilience among caregivers of children with disabilities. Current Psychology. Advance online publication. https://doi.org/10.1007/s12144-024-05678-9 [Google Scholar] [Crossref]

27. Li, X., Brown, H., & Chen, Y. (2022). Effectiveness of structured routines and reinforcement strategies for children with developmental disorders. Research in Developmental Disabilities, 126, 104256. https://doi.org/10.1016/j.ridd.2022.104256 [Google Scholar] [Crossref]

28. Johnson, R., & Patel, S. (2022). Behavioral interventions and caregiver stress in children with autism spectrum disorder. Journal of Autism and Developmental Disorders, 52(7), 3012–3025. https://doi.org/10.1007/s10803-021-05234-6 [Google Scholar] [Crossref]

29. Zhang, Y., Liu, J., & Wang, S. (2023). Meaning-making and resilience among caregivers of children with chronic illness. Journal of Advanced Nursing, 79(6), 2103–2115. https://doi.org/10.1111/jan.15567 [Google Scholar] [Crossref]

30. Lindström, C., Årestedt, K., & Öhlen, J. (2022). Emotional ambivalence and resilience in family caregivers: A qualitative study. International Journal of Qualitative Studies on Health and Well-being, 17(1), 2033456. https://doi.org/10.1080/17482631.2022.2033456 [Google Scholar] [Crossref]

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